By Joel Ross | January 19, 2012
Recently, I blogged about the Trial Match component of the Alzheimer’s Association. It’s mission is simple:
Welcome to Alzheimer’s Association TrialMatch™, a free service that makes it easy for people with Alzheimer’s, caregivers, families and physicians to locate clinical trials based on personal criteria (diagnosis, stage of disease) and location.
Right now, we are in the midst of an exciting time. More than 100 research studies pertaining to Alzheimer’s disease and related dementias are underway and recruiting volunteers. Alzheimer’s Association TrialMatch lets you search these trials quickly and easily. It also narrows results to those trials where there is a reasonable chance to be accepted for enrollment. This saves time for both you and the researcher. Enrolling the right participants helps researchers accurately measure the effect of a treatment.
I could not agree more with these statements. So if you know of a loved one with dementia or even Mild Cognitive Impairment, now is the time to search for a clinical trial. What do you have to lose by not calling? Sadly and possibly more of our precious memory.
Dr Ross
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By Joel Ross | January 19, 2012
As the provider of health care to probably the largest number of AD patients and their caregivers, it is with great pride I attach this important message from the President of the Alzheimer’s Association in its War on Alzheimer’s Disease.
“Alzheimer’s can’t wait and families won’t forget”
This was the sentiment expressed by Harry Johns, President and CEO of the Alzheimer’s Association during the second meeting of the Advisory Council on Alzheimer’s Research, Care and Services held January 17-18 in Washington D.C. Charged with providing recommendations to the Department of Health and Human Services (HHS) for the development of the National Alzheimer’s Plan, the Advisory Council put forward goals and strategies to change the trajectory of Alzheimer’s disease.
With as many as 5.4 million Americans living with Alzheimer’s and nearly 15 million friends and family members providing care for them, the need to develop an “urgent, achievable and accountable strategy” was on the minds of Advisory Council members. Alzheimer’s is the sixth leading cause of death and the only one among the top ten without a way to cure, prevent or even slow its progression.
HHS recently outlined its timetable for the development of a National Alzheimer’s Plan, with the first draft targeted for mid-February and a final plan slated to be released in late spring. Advisory Council members shared their recommendations on what they believe must be included in an effective national strategic plan touching on areas from funding for research to clinical care to long term services and support.
The next in-person meeting of the Advisory Council meeting is scheduled for April 17, but you can read the current Draft Framework for the National Alzheimer’s Plan right now. And please share your feedback on the draft with us.
It’s your turn!
Members of Congress have heard the voices of people from across the country, but now they need to hear from you in person. Join a nationwide group of advocates on April 23-25, 2012, in Washington, D.C., for the Alzheimer’s Association® Advocacy Forum. Together we’ll take our message directly to Congress and fight for a future without Alzheimer’s disease. Visit alz.org/forum to register.
Sincerely,
Robert Egge
Vice President, Public Policy
Alzheimer’s Association
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By Joel Ross | January 18, 2012
I attended the annual meeting of this wonderful organization and witnessed a group of dedicated individuals committed to giving back to their community the spirit of volunteerism.. Started in the 1990′s it serves many thousands of victims of Alzheimer’s Disease and related dementia in so many important ways.
The organization provides help for those afflicted with disorders such as all forms of dementia by providing transportation to doctor offices, assisting in shopping as well as offering PET therapy to ease the stresses associated with aging and dementia.
The Board is made of devoted individuals from ministers, pastors, reverends, rabbis, attorneys, physicians, real estate executives, builders, therapists, as well as many caregivers.
I would suggest to President Obama that his recently declared war on Alzheimer’s Disease should use this organization’s model of volunteerism as the prototype for all others interested in easing the burden of Alzheimer’s Disease and related dementias.
For more information on this organization please visit the link at: http://www.caregivervolunteers.org/
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By Joel Ross | January 18, 2012
I am a member of the advisory board to NAPA and suggested that every county in America have a Memory Enhancement Center. Why? Because there is no such center anywhere in the world to provide comprehensive management from MCI to advanced Alzheimer’s Disease.
President Obama has made a great leap forward to declare war on AD. But there is no money allocated to my knowledge to start the battle. Please read below:
Congress officially declares war on Alzheimer’s
The House of Representatives came to a unanimous decision to pass the National Alzheimer’s Project Act (NAPA). The last step required is simply for President Obama to sign, which is expected to happen soon.
The goals of the act are:
(1) Accelerate the development of treatments that would prevent, halt, or reverse the course of Alzheimer’s;
(2) Create and maintain an integrated national plan to overcome Alzheimer’s;
(3) Help to coordinate the health care and treatment of citizens with Alzheimer’s;
(4) Ensure the inclusion of ethnic and racial populations that are at higher risk for Alzheimer’s or that are least likely to receive care in clinical, research, and service efforts with the purpose of decreasing health disparities;
(5) Coordinate with international bodies to integrate and inform the fight against Alzheimer’s globally; and
(6) Provide information and coordination of Alzheimer’s research and services across all federal agencies. Sets forth the duties of the Director of the Office, including to use discretionary authority to evaluate all federal programs concerning Alzheimer’s. Establishes in the Office an Advisory Council on Alzheimer’s Research and Treatment.
For more information, visit, the Alzheimer’s Association’s page on NAPA’s development.
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By Joel Ross | January 10, 2012
Pfizer is seeking volunteers who have mild to moderate Alzheimer’s Disease to consider participating in a clinical research study. Please link below to learn more about this new study.
Dr Ross
http://www.alzresearch.com/
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